Conditions Specific Organizations
East Tennessee Pediatric Cardiology is appreciative of the efforts of these groups, organized for patients and families with specific cardiac diagnoses or syndromes. Please note that we have not reviewed all the information on these web sites, and so we cannot endorse all their content in its entirety.
Alagille syndrome
Cardiomyopathy
CHARGE syndrome
DiGeorge syndrome - we have not found a web-site dedicated solely to this condition. You may find valuable information on the site for velocardiofacial syndrome, a very similar condition with similar genetics. Also, the second link is to a local East Tennessee group committed to these conditions.
Down syndrome
Friedreich's ataxia
Heart transplantation
Hypertrophic cardiomyopathy
Hereditary Hemorrhagic Telangectasias (Osler Weber)
Kawasaki Disease
Marfan
Muscular dystrophy
Noonan syndrome
Pulmonary hypertension
Tuberous sclerosis
Turner syndrome
VACTERL association
Williams syndrome